소아소아청소년 뇌전증과 뇌전증 백문백답 출처와 참조문헌, Pediatric Epilepsy and Epilepsy Sources and References
출처 및 참조 문헌 Sources and references
- NelsonTextbook of Pediatrics 22ND Ed
- The Harriet Lane Handbook 22ND Ed
- Growth and development of the children
- Red Book 32nd Ed 2021-2024
- Neonatal Resuscitation, American Academy Pediatrics
■ 소아가정간호백과-부모도 반의사가 되어야 한다, 이상원 저
■ Red book 29th edition 2012
■ Nelson Text Book of Pediatrics 19th Edition
■ 부모도 반의사가 되어야 한다 www.koreapediartics.com제12권 소아청소년 신경 정신 정서 심리 행동 잠 문제 참조문헌 및 출처
■ Neurology in Pediatrics, P. F. Bray, Year book Medical Publishers
■ Behavior Disorders in Children, Bakwin and Bakwin
■ Sources and references on Growth, Development, Cares and Diseases of Newborn Infants
■ The Harriet Lane Handbook 19th ed. Johns Hopkins Hospital, Branden Engorn, MD, Jamie Flerlage, MD
■ Epilepsy Foundation, New England and Conn USA Epilepsy 2010
■ Hand Book of Pediatric Neurology Katherine B. Sims, Jurriaan M. Peters, Patricia L. Musolino, M. Zelime Elibol 2014
■ World Health Organization. Neurological Disorders:Public Health Challenges.
■ Available at www.who.int/mental_health/neurology/neurodiso/en/index.html
■ How common are the “common” neurological disorders?
■ Neurology 2007;68:326—37.
■ National Epilepsy Foundation. Epilepsy and seizure statistics.
■ Available at www.epilepsyfoundation.org/aboutepilepsy/index.cfm/statistics.cfm
■ Available at www.epilepsyfoundation.org/aboutepilepsy/index.cfm/statistics.cfmAccessed December 14, 2011
■ Epilepsy& Child ToolKit Epilepsy foundation and Epilepsy therapy Project
■ For more information or advice about epilepsy, contact Epilepsy Action Australia on 1300 37 45 37 or email epilepsy@epilepsy.org.au
■ Harvard Medical School, The Michael J. Bresnan Child Neurology Course September 15-19 2014
■ 소아과학 대한교과서
■ 의학용어사전 대한의사협회
제4부 부록
◘ 뇌전증 재단, 미 각주 협조 재단의 주소, 전호 번호, 웹사이트, 뇌전증 책 등의 정보
■ 미 뇌전증 환자들과 그들의 가족들을 근본 필수조건을 지원해주는 미국 내 자원
■ Essential Resources for the People with Epilepsy and Their Family in USA
■ US Social Security Administration Social Security Income (SSI) 1-(800) 772-1213 http://www.ssa.gov/dibplan/
■ US Department of Health and Human Services Websites managed by the Centers for Medicare & Medicaid Services that provide information about federal government programs. http://www.cms.gov
■ Medicare Limited Income NET Program www.cms.gov/Medicare/Eligibility-and-Enrollment/ LowIncSubMedicarePresCov/MedicareLimitedIncomeNET.html Health Care into Your Own Hands Program www.healthcare.gov/
■ Medicare Rights Center A national non-profit customer service that works to ensure access to affordable health care for older adults and people with disabilities . On-line subscription for ‘Medical Watch’ www.medicarerights.org Answers to Medicare questions from Medicare Interactive www.medicareinteractive.org Consumer Helpline: 1-(800) 333-411
■ NeedyMeds Provides help with the costs of medicine. www.needymeds.org/index.htm
■ US Department of Veterans Affairs Medical Centers Traumatic Brain Injury (TBI) is a common cause of post-traumatic
■ Epilepsy (PTE). PTE is a seizure disorder that is caused by TBI. VA hospitals specializing in PTSD found at: ww.va.gov 29
■ US Department of Education Office of Civil Rights The federal office that serves student populations facing discrimination in public schools of Mass, RI, NH & ME.5 Post Office Square, 8th floor, Boston, MA 02100 (617) 289-0111; 1-(877) 521-2121 (V/TTY) http://www.OCR.Boston@ed.gov Springfield Office (413) 739-2140
■ Learning Disabilities Association of America A nonprofit organization dedicated to providing information advocacy for children and adults with learning disabilities. Individual chapters in all states. Headquarters: 4156 Library Road Pittsburgh, PA 15234-1349; (412) 341-1515
■ Medical Alert IDs Informs people about what to do and/or whom to contact if you have a seizure. Purchase customized medical alert bracelets and necklaces from American Medical ID.1-(800) 432-5378 www.medicalert.org
■ Be Safer At Home – Personal Emergency Response Svc. Provides a selection of products to help manage safety in the home, including medication management, personal medical information, storage and an emergency response service. 800 West Cummings Park Woburn, MA 01801(781) 938-7377; 1-(866) 513-7377 outside Massachusetts www.besaferathome.com
■ Outdoor Mindset (OM) Program for those affected by a neurological challenge and have a passion for the outdoors.(720) 251-4166www.outdoormindset.org
■ Epilepsy foundation, epilepsy therapy project usa
◘ 미국 뇌전증 재단과 웹사이트
■ Epilepsy Foundation: www.epilepsyfoundation.org
■ National Library of Medicine: www.nlm.nih.gov/medlineplus/epilepsy.html
■ Centers for Disease Control and Prevention: www.cdc.gov/epilepsy
■ Epilepsy.com: www.epilepsy.com/epilepsy/main_epilepsy
■ Mayo Clinic: www.mayoclinic.org/epilepsy
■ No More Seizures Medication Database: www.nomoreseizures.org
■ American Academy of Pediatrics: www.medicalhomeinfo.org/tools/care_notebook.html
■ Project Access: www.epilepsyfoundation.org/projectaccess/findaresource/forfamilies/Toolkits-Care-Books.cfm
■ Epilepsy Foundation eCommunities: www.epilepsyfoundation.ning.com
■ Epilepsy.com Community: www.epilepsy.com/community
■ Facebook and Twitter: the national Epilepsy Foundation office and several of the local affiliates host pages for announcements, information, and discussion: www.facebook.com & www.twitter.com (search for epilepsy)
■ Epilepsy Foundation: www.epilepsyfoundation.org/livingwithepilepsy/parentsandcaregivers/parents/infants/index.cfm
■ Epilepsy.com: www.epilepsy.com/info/family_infants
WebMD: www.webmd.com/epilepsy/epilepsy-guide-8/default.htm
■ Epilepsy.com: www.epilepsy.com/info/family_kids
■ Epilepsy Foundation’s Youth and Young Adults Section: www.epilepsyfoundation.org/livingwithepilepsy/youth/youngadults/index.cfm
■ Epilepsy.com: www.epilepsy.com/info/family_teens
■ Epilepsy Foundation: www.epilepsyfoundation.org/aboutepilepsy/healthrisks/sudep/index.cfm
■ SUDEP Aware: www.sudepaware.org
■ Epilepsy Bereaved: www.sudep.org
◘ 뇌전증이 있는 자녀들을 둔 부모들을 위한 책(Books for Parents with epileptic children)
■ Epilepsy: Patient and Family Guide (2008) by Orrin Devinsky, M.D.
■ Brainstorms: Epilepsy on Our Terms – Stories by Children with Seizures and Their Parents (2008) by Steven Schachter, M.D.; Georgia Montouris, M.D.; John M. Pellock, M.D.
■ Brainstorms: Epilepsy in Our View-Stories from Friends & Families of People Living with Epilepsy (2008) by Steven C. Schachter, M.D.
■ Epilepsy: 199 Answers (2008) by Andrew N. Wilner, M.D., FACP, FAAN
■ Missing Michael – A Mother’s Story of Love, Epilepsy, and Perseverance (2005) by Mary Lou Connolly
■ Growing up with Epilepsy (2003) by Lynn Bennett Blackburn, Ph.D.
■ Seizures and Epilepsy in Childhood (2002) by John Freeman, M.D., Eileen P.G. Vining, M.D., and Diana J. Pillas
■ The Spirit Catches You and You Fall Down (2007) by Anne Fadiman
■ Brothers & Sisters (1994) by Epilepsy Foundation
■ The Music Room (2009) by William Fiennes
■ Children with Seizures (2006) by Martin Kutscher
■ Brainstorms: Epilepsy in Our Words- Personal Accounts of Living with Seizures (2008) by Steven C. Schachter, M.D.
■ The Ketogenic Diet: A Treatment for Children and Others with Epilepsy, Fourth Edition (2007) by Jennifer Freeman, John Freeman, M.D., Eric Kossoff, M.D., Millicent Kelly, RD, LD
■ Epilepsy and Your Child – The ‘At Your Fingertips’ Guide (2004) by Richard Appleton, Brian Chappell, Margaret Beirne For Children & Teens:
■ Mommy, I Feel Funny (2009) by Danielle M. Rocheford
■ Being Sara (2009)by Chris Passudetti
■ Let’s Learn with Teddy about Epilepsy (2008) by Yvonne Zelenka, Ph.D.
■ Koko The Service Dog (2008) by Lisa Mink, M.S.
■ Through His Eyes (2009) by Lisa M. Loiodice
■ Epilepsy: The Ultimate Teen Guide (2007) by Kathlyn Gay
■ Straight Talk on Epilepsy: What Kids Need to Know (2006) by Epilepsy Foundation & Abbott Neurosciences
■ My Friend Matty: A Story About Living with Epilepsy (2005)by Debra & Richard Siravo
■ Taking Seizure Disorders to School (1996) by Kim Gosselin
■ Becky the Brave: A Story about Epilepsy (2002) by Laurie Lears
■ Taking Seizure Disorders to School: A Story about Epilepsy (2001) by Kim Gosselin
■ Special People, Special Ways (2000) by Arlene Maguire
■ Karen’s Epilepsy (2010)by Elizabeth Baltaro
◘ 미 뇌전증 재단과 미 각주의 뇌전증 협력 재단
■ Alabama
Epilepsy Foundation Alabama
Mobile, AL 800-626-1582 or 251-341-0170 www.epilepsyfoundation.org/Alabama
■ Alaska
Epilepsy Foundation Northwest
Seattle, WA 800-752-3509 or 206-547-4551 www.epilepsynw.org
■ Arizona
Epilepsy Foundation Arizona
Phoenix, AZ 888-768-2690 www.epilepsyfoundation.org/arizona
■ California
Epilepsy Foundation Greater Los Angeles
800-564-0445 or 310-670-2870 www.epilepsy-socalif.org
Epilepsy Foundation Northern California
San Francisco, CA 800-632-3532 www.epilepsynorcal.org
Epilepsy Foundation San Diego County
San Diego, CA 619-296-0161 www.epilepsysandiego.org
■ Colorado
Epilepsy Foundation Colorado
Greenwood Village, CO 888-378-9779 or 303-377-9774 www.epilepsycolorado.org
■ Connecticut
Epilepsy Foundation Connecticut
Middletown, CT 800-899-3745 or 860-346-1924 www.epilepsyct.com
■ Delaware
Epilepsy Foundation Delaware
Newport, DE 877-369-2266 or 302-999-9313 www.epilepsyfoundation.org/delaware
■ District of Columbia
Epilepsy Foundation Metropolitan Washington
Landover, MD 800-332-1000 or 301-918-2117 http://old..epilepsyfoundation.org/local/MetropolitanWashington
■ Florida
Epilepsy Foundation Florida
Miami, FL 877-553-7453 or 305-670-4949 www.epilepsyfla.org
■ Georgia
Epilepsy Foundation Georgia
Atlanta, GA 800-527-7105 or 404-527-7155 www.epilepsyga.org
Epilepsy Foundation Southeast Tennessee
Chattanooga, TN 866-570-1789 or 423-634-1771 www.epilepsy-setn.org
■ Hawaii
Epilepsy Foundation Hawaii
Honolulu, HI 866-528-3058 or 808-528-3058 www.hawaiiepilepsy.com
■ Idaho
Epilepsy Foundation Idaho
Boise, ID 800-237-6676 or 208-344-4340 www.epilepsyidaho.org
■ Illinois
Epilepsy Foundation Greater Chicago
800-273-6027 or 312-939-8622 www.epilepsyfoundation.org/chicago/
Epilepsy Foundation Greater Southern Illinois
Belleville, IL 866-848-0472 or 618-236-2181 www.efgreatersil.org/
Epilepsy Foundation North/Central Illinois, Iowa
& Nebraska
Rockford, IL 800-221-2689 or 815-964-2689 www.epilepsyheartland.org/
■ Indiana
Epilepsy Foundation Indiana
Indianapolis, IN 800-526-6618 or 317-876-0600 www.indianaepilepsyfoundation.org
Epilepsy Foundation Kentuckiana
Louisville, KY 866-275-1078 or 502-637-4440 www.epilepsyfoundation.org/kentuckiana
Epilepsy Foundation Greater Cincinnati
& Columbus
Cincinnati, OH 877-804-2241 or 513-721-2905 www.cincinnatiepilepsy.org
■ Iowa
Epilepsy Foundation North/Central Illinois, Iowa
& Nebraska
Rockford, IL 800-221-2689 or 815-964-2689 www.epilepsyheartland.org/
■ Kansas
Epilepsy Foundation Missouri & Kansas
Saint Louis, MO 800-264-6970 or 314-781-4949 www.efmk.org
■ Kentucky
Epilepsy Foundation Greater Cincinnati
& Columbus
Cincinnati, OH 877-804-2241 or 513-721-2905 www.cincinnatiepilepsy.org
Epilepsy Foundation Kentuckiana
Louisville, KY 866-275-1078 or 502-637-4440 www.epilepsyfoundation.org/kentuckiana
■ Louisiana
Epilepsy Foundation Louisiana
Baton Rouge, LA 800-960-0587 or 225-298-5499 www.epilepsylouisiana.org/
■ Maine
Epilepsy Foundation New England
Boston, MA 888-576-9996 or 617-506-6041 www.epilepsynewengland.org
■ Maryland
Epilepsy Foundation Chesapeake Region
Towson, MD 800-492-2523 or 410-828-7700 www.abilitiesnetwork.org
■ Massachusetts
Epilepsy Foundation New England
Boston, MA 888-576-9996 or 617-506-6041 www.epilepsynewengland.org
■ Michigan
Epilepsy Foundation Michigan
Southfield, MI 800-377-6226 or 248-351-7979 www.epilepsymichigan.org
■ Minnesota
Epilepsy Foundation Minnesota
Saint Paul, MN 800-779-0777 or 651-287-2300 www.efmn.org
■ Mississippi
Epilepsy Foundation Mississippi
Flowood, MS 800-898-0291 or 601-936-5222 www.epilepsy-ms.org
■ Missouri
Epilepsy Foundation Missouri & Kansas
Saint Louis, MO 800-264-6970 or 314-781-4949 www.efmk.org
■ Nebraska
Epilepsy Foundation North/Central Illinois, Iowa
& Nebraska
Rockford, IL 800-221-2689 or 815-964-2689 www.epilepsyheartland.org/
■ New Hampshire
Epilepsy Foundation New England
Boston, MA 888-576-9996 or 617-506-6041 www.epilepsynewengland.org
■ New Jersey
Epilepsy Foundation New Jersey
Trenton, NJ 800-336-5843 www.efnj.com
■ New York
Epilepsy Foundation Long Island
Garden City, NY 888-672-7154 or 516-739-7733 www.efli.org
Epilepsy Foundation Metropolitan New York
New York, NY 212-677-8550 www.epilepsyinstitute.org
Epilepsy Foundation Northeastern New York
Albany, NY 800-894-3223 or 518-456-7501 www.epilepsyfoundation.org/efneny
Epilepsy Foundation Rochester-Syracuse-
Binghamton
Rochester, NY 800-724-7930 or 585-442-4430 www.epilepsyuny.org
■ North Carolina
Epilepsy Foundation North Carolina Winston Salem, NC
800-451-0694 or 336-716-2320 www.epilepsync.org
■ North Dakota
Epilepsy Foundation Minnesota
Saint Paul, MN 800-779-0777 or 651-287-2300 www.efmn.org
■ Ohio
Epilepsy Foundation Greater Cincinnati
& Columbus
Cincinnati, OH 877-804-2241 or 513-721-2905 www.cincinnatiepilepsy.org
Epilepsy Foundation Western Ohio
Dayton, OH 800-360-3296 or 937-233-2500 www.epilepsyfoundation.org/westernohio Oregon
Epilepsy Foundation Northwest
Seattle, WA 800-752-3509 or 206-547-4551 www.epilepsynw.org
Pennsylvania
Epilepsy Foundation Eastern Pennsylvania
Philadelphia, PA 800-887-7165 or 215-629-5003 www.efepa.org
Epilepsy Foundation Western/Central Pennsylvania
Pittsburgh, PA800-361-5885 or 412-322-5880 www.efwp.org
Puerto Rico
Sociedad Puertorriquena De Epilepsia
Bayamón, PR 787-782-6200 www.sociedadepilepsiapr.org
Rhode Island
Epilepsy Foundation New England
Boston, MA888-576-9996 or 617-506-6041 www.epilepsynewengland.org
Tennessee
Epilepsy Foundation East Tennessee
Knoxville, TN
800-522-4991 or 865-522-4991 www.efeasttn.org/
Epilepsy Foundation Middle & West Tennessee
Nashville, TN 800-244-0768 or 615-269-7091 www.epilepsytn.pmhclients.com/index.php
Epilepsy Foundation Southeast Tennessee
Chattanooga, TN 866-570-1789 or 423-634-1771 www.epilepsy-setn.org
■ Texas
Epilepsy Foundation Central & South Texas
San Antonio, TX 888-606-5353 or 210-653-5353 www.epilepsyfoundation.org/local/efcst
Epilepsy Foundation Texas – Houston/Dallas/Fort
Worth
Houston, TX 888-548-9716 or 713-789-6295 www.eftx.org
Vermont
Epilepsy Foundation Vermont
Rutland, VT 800-565-0972 or 802-775-1686 www.epilepsyvt.org
■ Virginia
Epilepsy Foundation Virginia
Charlottesville, VA 434-924-8669 www.efva.org
Washington
Epilepsy Foundation Northwest
Seattle, WA 800-752-3509 or 206-547-4551 www.epilepsynw.org
■ Wisconsin
Epilepsy Foundation Heart of Wisconsin
Madison, WI 800-693-2287 or 608-442-5555 www.epilepsywisconsin.org
Epilepsy Foundation Southeast Wisconsin
Milwaukee, WI 877-271-1994 or 414-271-0110 www.epilepsyfoundationsewi.org
◘ 미뇌전증 웹사이트-미 뇌전증 재단
■ Web Sites-Epilepsy Foundation www.epilepsyfoundation.org or www.Epilepsy.com
■ eCommunities www.epilepsyfoundation.ning.com
■ Project Access: www.accessforepilepsy.com
■ Talk About It: www.talkaboutit.org
■ Epilepsy.com Web site www.epilepsy.com
■ Centers for Disease Control and Prevention – Epilepsy Programs www.cdc.gov/epilepsy
■ SeizureTrackerwww.seizuretracker.com
■ EpilepsyClassroomwww.epilepsyclassroom.com
■ American Academy of Pediatrics Build Your Own Care Notebook www.medicalhomeinfo.org/tools/care_notebook.html
■ Family Voices & Family-to-Family Health Information Centers (F2F HICs)
www.familyvoices.org
■ Parent-to-Parent USA www.p2pusa.org
■ Pacer Center www.pacer.org
■ Parent Training & Information Centers and Community Parent Resource Centers www.taalliance.org
■ Exceptional Parent Magazine www.eparent.com
■ National Information Center for Children and Youth with Disabilities (NICHCY)
www.nichcy.org